1/16/2026
If you've ever diagnosed or treated a Castleman disease patient, you already know the problem.
Castleman disease is a rare and heterogeneous disorder. The diagnosis is rarely straightforward. Terminology is inconsistent. The literature is fragmented. Patients and clinicians are often left navigating uncertainty with high stakes and limited guidance.
We are here to change that. We are here to drive better diagnoses together.
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Most clinicians encounter Castleman disease infrequently. When they do, they are often forced to sort through scattered papers, rapidly evolving criteria, and dispersed expert opinions. That creates uncertainty which affects patients, families, clinicians, and pathologists
The Castleman Disease Education platform was established to put clear, accurate, and practical information in one place, with an emphasis on how diagnosis actually works and what we can do to improve diagnostics together. I will share monthly updates. Some will be educational. Others will interpret new publications, announcements, or shifts in the field. The goal is not comprehensiveness. The goal is relevance.
The focus is simple:
If something is unclear or controversial, it will be addressed honestly rather than smoothed over.
This is written for patients and caregivers seeking clarity, clinicians and pathologists making diagnostic decisions, lab professionals supporting complex testing, and researchers working in the rare disease space.
If you value depth over noise, this is for you.
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In a world full of distractions, time matters. I'm glad you're choosing to focus on Castleman disease and on getting it right.
Bob Ohgami, MD, PhD, MBA Castleman Disease Education https://www.castlemandiseaseeducation.com
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